SamReport.com

Fri 2 July

It’s been a while huh?

Sorry for that. Life gotten rather interesting for Samuel and those of us that love him.

First of all we will be done in Lincoln on 16 July. If you go back 6 months Samuel was just feeling sick. So in the last 6 months life for him, myself, and almost everyone I know has changed in some way. Sometimes drastic sometimes not. But change for sure.

So…. How is Sam doing? Well all in all he is doing pretty damn well. He walks, runs, jumps and more. His leg strength is all but completely restored. As well as strength his stamina and coordination improve daily. His arm strength continues to improve and he is capable of using his right hand for many more tasks. He has officially become a lefty he told me the other day… HA! (One more in your corner, Ma!) But that is all well and good. He writes, eats and performs all other one handed tasks left handed. And he does them rather well.

His eyesight continues to improve as well. He still has a blurry/murky spot in the center of his left eye but his right seems fine. He is doing exercises every night at home to help with this.

And his speech? If you ask me he is great. Speech impediments are kinda the norm in my family and Samuel is just one more facet of the oddities of our genetics now… Haha! He speaks in complete sentences and while I have to help him remember some words, all in all he communicates well even with strangers. If he cant remember the word “Tree”, he just describes it until I get it. He will say “Big. Green. Leaf. Wood.” Etc…. Until it gets through my rather thick skull. Jacob is probably even better at the guessing than I am.

He will attend school at Derby Middle School this year and will be in the 8th grade. We may not be able to catch him up fully with his class but he is moving quickly through most of his subjects. His reading gets better every day. He is doing fractions and basic pre-algebraic tasks in math. Geography and science are coming back every day. We spent two hours talking about history at home. So in the area of education he is just fine.

His scars are healing… The visible ones at least. He and I have cried together more than once when we talk about what he has been through. He is as paranoid as I am at every headache and sniffle he gets. Only time will tell if we can shake that black cloud.

So after six months life has not stopped. The people we had in our life have changed some. We do things a little differently. We speak a bit slower. Say “I love you” more. We spend less time playing video games and more time talking. I make dinner more often than before. Playing a board game w my boys is more fun than any night out.

Being a father has been the hardest, most taxing, and frustrating thing I’ve ever done. It takes every cent I make. Every drop of energy. Countless nights without sleep. Days and days and days of monotonous routine. Pain, tears, and headaches are par for the course.

But you know what? It is the most worthwhile, rewarding, satisfying, exhilarating, and enjoyable experience of my life. It is better than any other love or game or accomplishment I have ever experienced.

I am grateful for every single day.

Later,

C~

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