It’s been a while huh? Sorry for that. Life gotten rather interesting for Samuel and those of us that love him. First of all we will be done in Lincoln on 16 July. If you go back 6 months Full Article

I taught my son how to shave today. What an amazing thing, “fatherhood” is… Parenting is a thankless job. Long hours and tons of money and work usually taken in stride and for Full Article

Its a good day! So here is the newest scoop. First off he is growing more independent every day. He goes to all of his therapies by himself. I follow shortly after but he knows where they are and Full Article

So Here is the scoop. Since we have been back at Madonna Samuel has made progress in leaps and bounds. In all areas he is becoming stronger and more capable. He is walking as much as any one can. His Full Article

Ok. Some better news today. Samuel is doing much better. We started another medication, acetazolamide. While this may somewhat contraindicated for kidney disease his urine output and quality are good Full Article